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Old 12-11-2012, 04:48 PM   #11 (permalink)
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I hear what you guys are saying about being skeptical of being deficient in vitamin D, but I do feel that I am. I've been researching it since my diagnosis and have learned quite a bit about it. Including (as mentioned above) that where I live is one of the bad areas for vitamin D deficiency. The only sun I can get right now is during the late afternoon on my lunch hour and by that the time the sun's not at it's full strength. When I leave for work the sun is up, but with all the trees and everything it's not completely over my house until the afternoon. When I come home from work it's already dark. During the summer it's much easier. Also as I said I don't eat a lot of dairy or drink milk. My diet definitely needs to get more balanced which I'm working on.

I did track down the magnesium supplement I want to try so we'll see if that helps at all. From all the reading I've done, it sounds like it's a good brand with a lot of great reviews. Hopefully relief will be here soon.
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Old 12-11-2012, 05:53 PM   #12 (permalink)
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Mandy, it could be arthritis. I have it and when I first get out of bed, I am aching and stiff. But as I move around, it feels alot better. Of course, I am an old person too! I hope you get to feeling better. Such a shame and I don't believe the doctor's diagnosis either...
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Old 12-14-2012, 08:45 AM   #13 (permalink)
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Thanks, I'm taking a lot of supplements right now (glucosamine w/chondroitin, vit D, magnesium taurate, and calcium). I just started the glucosamine and magnesium this week so I'm hoping in a week or so I'll start feeling a difference. If not I'll be going to back to the Drs (UGH!) and asking for more testing for arthritis. The pain has gotten better, but it's still very much there when I wake up. The past couple of days it's mostly been in the fingers of my right hand. I must sleep with my fingers kind of curled and when I wake up and try to straighten them it hurts!
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Old 12-14-2012, 10:37 AM   #14 (permalink)
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Mandy I get terrible leg cramps and from what I have read that could be a deficiency in magnesium do you have this problem? I was looking at Magnesium too for this and there are SO many different types geez. Which one did you settle on?
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Old 12-14-2012, 02:29 PM   #15 (permalink)
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I don't get cramps in my legs, but have done a lot of reading about magnesium and most of it stated that it's vital for bone and joint health so I figured I'd give it a shot. I'm pretty desperate to fix myself at this point. LOL

I read that magnesium taurate is the most absorbable. Do not get magnesium oxide because studies have shown as little as 4% is actually absorbed into the body! That's what I was taking!

I ended up getting this one
Amazon.com: Cardiovascular Research - Magnesium Taurate, 125 mg, 180 capsules: Health & Personal Care Amazon.com: Cardiovascular Research - Magnesium Taurate, 125 mg, 180 capsules: Health & Personal Care
not through Amazon though. I got it at my local Vitamin Shoppe.
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Old 01-14-2013, 02:10 PM   #16 (permalink)
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Quick update on this subject. I was taking that Magnesium Taurate and ended up getting an itchy rash on my stomach. I stopped taking it and the rash healed up. I started taking it again at a lower dosage and am doing fine now.

I'm going back to the Dr tomorrow to see if we can get more testing done. I had my vitamin D rechecked last weekend and I went from 11 back when I was first diagnosed to 53 (I should be between 30-80) and I'm still in a lot of pain, mainly AM and PM when the ibuprofen is wearing off. The pain seems to be affecting most of my joints (toes, ankles, knees, elbows, wrists, fingers, shoulders, neck, jaw). The pains are getting worst, not better as it should be. Sleeping has also been horrible lately. I seem to be waking up at least once an hour all throughout the night. To say I'm exhausted about 99% of the time is an understatement.

I've pretty much convinced myself that I have rheumatoid arthritis, fibromyalgia, or based on recent research possibly even Lyme Disease (causes joint pain if left untreated... we live in a tick heavy area). I just want to feel better again so hopefully they'll be able to figure it out quickly!
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Old 01-14-2013, 03:39 PM   #17 (permalink)
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Mandy I would surely get checked for Lymes. I have it and have for a few years. I have had a couple of reaccurances through the years but nothing antibiotics didnt take care of. When I have an outbreak or whatever its called I get flu like symptoms and get achy. If you do have Lymes an it hasnt been treated because they didnt know you had it it could be at a further advanced stage. Mine was caught fairly quickly.
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Old 01-14-2013, 04:20 PM   #18 (permalink)
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I remember pulling a tick off of my left arm (right about where your arm and arm pit crease is), but can't remember when. I remember I was laying down with Riley and when I woke up I had this weird ache there and sure enough there was a tick embedded. I Googled deer tick and if my memory serves me right it certainly looked like the tick I pulled. I didn't think much of it at the time though because I didn't get the bullseye rash, but reading now I know that you don't always get that rash.

I just can't remember when that happened. I just know that my problems started out shortly before Logan came home and has gradually gotten worst. Initially it was just my wrists, but it eventually got better and went away. Then it came back again and this time my shoulders were effected too. That's when I started going to the Drs.

I've also read that Lyme can cause insomnia which could explain why I'm not sleeping very well. I kind of hope this is what's going on just so I'll have answers and can try treating it. Hopefully the doctor will listen to what I have to say. She doesn't like it when patients do their own research. Oh well for her... I'm showing up prepared with some requests!
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Old 01-15-2013, 07:13 PM   #19 (permalink)
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So I had my appointment today. My doctor is testing my sedimentation rate, c reactive protein, for RA, and Lyme Disease. If the Lyme Disease comes back negative and the others are high, she's referring me to a rheumatologist. I'm not looking foward to it, but if it means an ending to the pain (or an improvement at the least), I'm going to do what I can.
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Old 01-15-2013, 08:29 PM   #20 (permalink)
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Oh I hope it's not rheumatoid arthritis as there is no ending to pain- just pain management.
I'll pray for Lyme or something less severe.

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